After 13 years of dedication, the Rare Disease Foundation completed the construction of a sanctuary, which was officially opened in October 2022. This sanctuary is designed to provide a healing space for patients and their families, allowing them to relax and rejuvenate without the constraints of physical discomfort and caregiving concerns. Here, they can receive professional services from psychologists and social workers, connect with other patients, share life experiences, and gather the courage and strength needed to face life’s challenges.

In the current “Sensory Integration – Music Game Group Class,” iST serves as a classroom assistant volunteer, assisting teachers and patients in safely participating in the program. iST has rallied a team of passionate volunteers, and over the next two months, they will spend every joyful weekend afternoon with the patients and their families.


About the "Taiwan Foundation for Rare Disorders"：

The Taiwan Foundation for Rare Disorders is dedicated to supporting families affected by rare diseases, providing essential services tailored to their needs. Our goal is to be a strong pillar for these families, ensuring they never feel alone on their journey.

In addition to services for patients, we also offer an interactive exhibition and engaging mini-games at the Genetics Education Center, helping visitors of all ages learn more about rare diseases in a fun and educational way.

Learn more: https://www.tfrd.org.tw/tfrd/service_l